Saturday, November 10, 2012

ROW 80 POST 24 – A KICK IN THE HEAD


In my last post I mentioned, or rather blathered on incessantly about “PD or not-PD,” knowing full well that this is a riff on Shakespeare’s soliloquy by Hamlet in hi eponymous play. One day, when I’m feeling reckless, I will attempt a parody, much like my “X-Files” Seti@Home Contest Parody, which some people actually liked. Today, however is not that day. I’m already fighting with my keyboard and typint typing stupid words and getting piddes pissed off. Right now, I’m leaving the strikethoguhs the strikethroughs in, because I don’t want to slow down. I normally type 100 words a minute.

This will be shourt (enough of that; it’s got to be as annoying to read as it is to do. Backing up is a pain, but this is the thiss shits) short. Yesterday, while on the phone with an old friend, I had a very, very deep chest pain. It was like crushing pressure and moved around to my back. Eventually it moved up both sides of my neck. It was not a heart attack. The EMS people came to see me and all of my vitals were absolutely normal, with the exception of my sugar, which was at 116. I was also eating scrambled eggs while talking to my friend.

My sugar has been cray-cray, to use Andi-Roo’s term. Last week, at one point it was as high as 269. Later in the day it was down to 49. I haven’t been diagnosed as diabetic, but, when I was in the hospital for 2 months, I had this kind of problem; I try to control it through diet, but as my brain produces less dopamine and the symptoms worsen, my sugar level fluctuations become greater.

All in all, it’s similar to a closed-head injury victim, someone whose “governor” has been damaged. I notice that almost all of my autonomic functions do not work as they once did. I used to have very good control over my emotions (too good some would say, as I stifled everything and it hurt me physically, hence the ulcer disease at age 9) now, I have poor impulse control, but am slow to anger. However, if you do threaten me, or someone weaker than yourself, you’re taking a ride. Either to the morgue or the ER, your choice. I will be on my way to either here:


Orient Road Jail

Wednesday, November 7, 2012

ROW 80 WEDNESDAY CHECK IN - "NOT-PD" AWARENESS MONTH



Sometimes, we have to listen to our hearts

Okay, so here we are, day 7 of NaNoWriMo and Day "I Forget" of #ROW80. I have just discovered that today is the 7th day of “Parkinson’s Awareness” month, which I knew nothing about. Because?

I’ve been having one hell of a writer’s block for NaNoWriMo. I know what I need to say, but it’s so goddamned painful, I can’t get there from here.

I’ve also been busy talking to national desks about All Things Political, here in Florida. Said ‘desks’ will remain unnamed for the time being; it seems someone has paid attention to my rantin’ and reasonin’ and I am going to be talking about it post-event, whatever said ‘event’ may be. Jeeze, now I sound like I have a tin foil hat and am channeling aliens on my fillings. Rest assured, I am not. It has to do with a petition I horked up like a hairball and some First Amendment gobbledy-gook trampling I whined about.

But, mainly, where we are is? I am having problems and maybe this is just my inner cry-baby, AGAIN! Like, when is it not? I hurt, I have pain. Yeah, we all do. I feel stupid and shitty and lower than low even talking about this. I’ve had and am having, really the most fabulous life, in spite of my start in life and is spite of the shit I brought down on my own head. I really can’t complain. So now, here I am, whining. Doesn’t it just drive you mad?

So, let me try and put it in non-whine terms. There’s lots of ow. Odd ow; sharp and bizarre, like a thousand and one little imps with pointy implements all over my body and in my organs. All of them, including eyes, ears, ear canals, brains, throat, gums, anyplace that has nerve endings. ANY place. I cannot emphasize that enough. Go wild with your imagination. And not just pains. Different sensations, too. Cold, hot, electricity. Everything, except? Nothing. There are times I’m NOT aware of some of the sensations, if I’m directed distracted (another thing I do; word substitution) by something else, or misdirected. Along with all of this is just plain numbness or tingling. If I injure myself, as I did when I burnt my hand on the grill, another part of my hand hurt, not the burnt part. Confused, much? So, I’m describing physical sensations, not whining here.

Lumped in with the physical, but a cross-over to the mental, are sensory inputs. My hearing is completely fucked up. I have always had absolute pitch and I trained my pitch memory in school. 35 years making a living in music has provided an ear that is more a pain in the ass than a gift. The worst thing in the world is listening to music that is out of tune; even a little bit. The basses in the open here are sharp and the tempo at the beginning is a bit fast (a minor quibble) and beside the point. I can’t understand certain things said or written.

Either words sound muffled and rushed; indistinct and slurred, or they have no meaning when I read them and I must read them again, sometimes several times to make sense of them. Sometimes I must ask people to repeat themselves, to the point where I’m embarrassed, or feel brain-damaged when they repeat ever… so… slow… ly. Gah!

So, ears, skin, they no work like they did. Check. Howz about time? Aah, yes, the old sense of time. Wait. Wait, wait. Sense of time is not a physical sense. So, sense of touch, check. Sense of hearing, oh yes. Did I mention the jungle that is constant in my head? The hooting and hollering? Check. Reminds me of the time I worked the swing shift at IBM. There were only about 20 of us at the time and we were scattered around this huge room in a cube farm.

One dead Friday night, around 11 o’clockish, someone hooted. Someone else, way on the other side of the room “awk-awk,” “eek-eek’ed” in return. Pretty soon, it sounded like a Tarzan movie set. I was, as I always seemed to be in these things, the one responsible engineer, on a call, trying to explain, to the caller why it sounded as if we were in the midst of a Jack Hanna extravaganza. I never muted these calls. Whoever had to listen to my calls for Quality Assurance deserved it. Anyway, I have all of that without the break-fix. Just the sound effects. They come and go.

All of this writin’ and rememberin’ is my way of sayin’ I’m tired. I’m tired and I’m sick and I cannot concentrate with the flair and fervor that I used to display. What took me 45 minutes to do, is now taking me 2 days and endless re-writes and backing ups and editings. I hate it. I have lost my lightning-in-a-bottle pizzazz when writing. Maybe, I never had it and I’m only fooling myself. I think not; I know myself pretty well. But, I’m beginning to hate writing and that is scaring me. So, for now, I will write as it “strikes” me. I will still follow and cheer on and participate in every other way. Admittedly, it hasn’t been much of late. But it’s because of “this,” whatever “this” is. I will still play around in SDBN (Now With Added Moms,) too. I love this, I just don’t want to start hating it and I want to do quality, not quantity.

I have recently come a bit farther in the whole “family saga and what do I think” thing, and as wonderful as I think my mother was, I think she wasn’t in many ways, if you get my drift. That’s my bale to tote and I’ll deal with it. I am not feeling bipolar-y in the psychotic break sense, just depressed. I’ll get over it. Depression is nothing new for me. I’ve dealt with it since I was 16. As long as I don’t stay up for a month and try to drink the Dawn dish soap, I’m good. I think sometimes, we need these little setbacks.

JC is 65 and we just got through what could have been a major health problem. He’s diabetic and he had an infection that ran “hot.” Within 24 hours, his right leg from just above his knee, down to his ankle was  swollen and infected. We initially thought it was due to our new Perm-a-Kitty scratching him; but no. She was the hero. He had and infection from the colonoscopy he had done at the local Medical School last June. They were a bit “rough.” WTF?!?!? Probably bumped something. When kitty kneaded his knee, extant infection, spread like wildfire. Of course, get the medical community to admit that. I have promised this man, that after all of his crappy, horrible life, he will end it in light and laughter, or I will make him wish he were dead, so I need to keep that promise. He’s doing ever so much better, but of course, I have to think up ways to keep him amused. I love him beyond reason. He’s a wonder

The other thing? I need to get a handle on this “PD or not-PD,” so to that end, I am going to be hangin’ with my PD buddies, and trying to support some of the stuff that’s going on. There are studies and I think if I push hard enough, through folks like Jim Adams and his wife, Penny Adams. They are founders of  P.A.N.D.A,, a new group that helps people with PD and other movement disorders. Israel Robledo, YumaBev, Parkinson’s Humor, Parkinson’s National Awareness Month and countless other groups and studies. Maybe one of these groups will listen to me. God knows I would love to participate in one of these Motor Disorder studies, preferably with a psychological, musical slant. 

I’d be a veritable Petri dish of interesting finds. I’m just tired of fighting ever-increasing symptoms and trying to keep abreast with everyone else, with all that's going on. It may not seem much, but let's face it. I'm getting old and I'm frayed around the edges, and probably in the middle, too, if we're honest. My sugar gets out of control and I have seizures now. Those are new. I won't get Medicare until March of next year. Just got the paperwork and entered the last 4 numbers of my SSN for my DOB. I believe in saving time. I'm a dumbass. Shit, now I have to interact with an actual person.

So, look at it this way; this isn’t goodbye, this is see ya… less. I hate indecisiveness. Asperger Syndrome, along with some type of stupid Spock bullshit; ain’t no cure for me.

P.S. I've just been informed by Penny Adams that this is Alzheimers/Dementia and Diabetes Awareness month; my bad. Still ain't no cure. I'm sure I have one of the 3.

Monday, November 5, 2012

#ROW80 POST 22 SUNDAY CHECK IN – HOW CATS ROLL


I mentioned several months ago that a beautiful buttery-type of cat, a female had decided to bestow her attentions upon us. She was pregnant at the time, and looked neglected. JC started feeding her hotdogs and all sorts of non-cat type food. He discovered that she didn’t really go for bologna, and as for hotdogs, well, he took to mashing those up with his fingers and then, because apparently, all common sense left our house, because I sat here and watched all this and said nothing, took to smearing mashed hotdogs on a napkin.


Mama and Baby

Cat ate hotdogs and napkin. Then, I remembered there is this nifty invention, called “cat food,” which you can buy in a store and all, so that’s what I did. Thus began the real relationship between Cat and Man. JC has had very little experience with cats, so I’ve just let him run with this. It’s funny and touching to listen to his stories and concerns over our former-Rent-a-Kitty, now-Perm-a-Kitty. 

JC hasn’t had much cat-ownership experience. He and his family had a few dogs, but by and large, JC was pretty much pet-less, so this has been pretty amusing. Given that he’s used to dogs, his cat experience has been pretty limited to ‘Dale Earnhart,’ the little monster that ruled over at the Homeless Shelter for about a month, before he was picked up for ‘illegal attraction.’

Someone stole him, so we were left with the pissy-tempered ‘Effy,’ who bit anyone who tried to pet her. She was aptly named, but we should have gone whole-hogged and just called her ‘Fuck You.’ Some of the geniuses at the shelter had their hearts in the right places, but zero brain cells; they kept putting spagghettios and dry cereal in her dish. 

One of the residents there, who had an actual brain, would dump out all of that shit, and put in “Friskies Li’l Shrapnel Bits” or whatever that shit is that he bought for all the strays. I call that dry food ‘shrapnel’ because if you’ve ever had a cat and ever fed them that stuff and ever stepped on it in the dark, that shit hurts! 

Gene, the sweet guy at Happy Acres, the Homeless shelter, who feeds cats, will always say, “Everyone knows cats don’t eat spaghetti! They know better than to feed cats spaghetti!” If I see him on the street or at the grocery, if I remember, I ask about the cats and spaghetti. He says, with disdain, “Cats don’t eat spaghetti!” I laugh every time; it’s the way he says it

Anyway, Dale was a mess; when he sauntered, he did so with that insouciance that graces only the most blessed of creatures. He just knew no one would harm him or ever wish him ill. He was right; wide-eyed, limpid, jade gaze, swiveling head, all innocent and “Who, me?” look. Tabby, with the kitten big feet, bat ears and hell’s bells! Everything’s fun! Leaf! Bug! Air! Nothing!

But that was pretty much the only experience that JC had with cats, so when Miss La La Buttercup came sauntering up, she was very discriminating. She was very cautious. We think she was someone’s pet and when she became pregnant, they dumped her off over here somewhere. The litter of kittens she was carrying was not her first litter, either.

JC had to really work to get her to come up on the porch. At first, he was disappointed and expected her to be more like a dog. He thought for a while that she didn’t like him. She is still skittish and shies away from people she doesn’t know. She doesn’t like to be around things she doesn’t recognize and starts easily at unusual sounds. Kinda like me. She is blind in her right eye. The cornea is dimmed, so she is either the victim of some asshole person or as I prefer to think, she was in a fight with another cat. I cannot bear to think of someone being cruel to any animal or creature smaller or weaker. My brain won’t allow for that.


Did you know cats have "whiskers" on their paws? I've been calling them "curb feelers"...

 Call me "50 Shades of Ass"

Okay, time for a new Pop Culture Meme, hmm?

So La Chat has gotten us dancing to her tune. I just so enjoy watching the delight he takes in trying to please this little cat. She gave birth to her 2nd litter of kittens, and only 1 of those survived. That little baby was hit and killed about 6 weeks ago. We were both devastated; JC more so than I, I think. I had expected it and had told him to expect it, but again, I’ve been through this before. He’s never dealt with feral cats, or more rightly feral offspring. The baby’s mother is pretty tame. Damn the people who abandoned her. She should have been spayed when they took her on as a kitten.

We had her spayed shortly after that incident. There is a woman in this neighborhood who volunteers and she was so kind. She brought over this huge metal contraption that looked more appropriate for trapping 40 lb bears in. It was hot-hot-hot that afternoon. This was one of those types of things that had to be done NOW, which I do so gracelessly, because of my ‘PD or non-PD’ and I was trying to sit out in full sun and not make a move, because, well, we don’t want to DISTURB THE KITTY, while JC moves ever so delicately to move the food towards the mouth of this metal nightmare of a contraption, so the KITTY DOESN’T KNOW THE FUCKING DIFFERENCE!

The only way the cat isn’t going to know that there is no change on the porch is if she is observing it from oh, say, Jupiter, because that fucking cage is bright! I’m sweating, fuming and getting more pissed off by the minute. Not at any one thing, just at the whole fucking universe. My damn right hand is twitching, my eyeballs and brains are electric and I know I’m going to seize. Shit.

So, I ‘scamper’ off to the store and miracle of miracles, JC gets kitty in the cage, swift and elegant as can be. The nice lady whisks her off. After all the hustle and bustle, JC and I look at each other, like Christmas just left. Really. Vaguely disappointed, uncertain. He says, “Do you think she’ll be okay?” I nod, “Of course, she will.”

We go back and forth over the few instructions we’ve been given, examining each one as a talisman, trying to read tea leaves and meaning and hope. “Well, she’ll have to stay in the bathroom,” JC tells me. I nod my head wisely, as if I have never heard this before. “Yes, and we’ll have to make sure we give her plenty of food and water.” I hold up my right index finger, as if a salient point in a court of law has just been proven.

“The lady said she would bring her a pan to poop and pee in,” I point out helpfully, peeking out from under my eyelashes, making sure JC understands that so wondrous a creature as his cat does answer calls of nature. “I don’t care if she pees in the tub!” He defends her stoutly. “Yeah!” I cheer enthusiastically, as if we’re at a Buccaneers game. But he asked me, “Do you think she likes us?” I thought for a moment. I said, “She tolerates me, but honey? She adores you!” It’s true. She absolutely loves JC, and I am so grateful for that.

Of course, when she came home the next night, nothing went as planned. She almost got out of the house. She sort of stalked around, wouldn’t eat anything. Poor JC, he insisted on trying about 8 different kinds of canned food and combinations. We finally got lucky, and she ate some of it, then she climbed up on the bed and conked out in his spot. I was able to wake her long enough to get her to lie between us. He fell asleep as he usually does easily. I was having a ‘PD or non-PD’ sundowner-circus extravaganza and this involves heavy narcotics. Okay, not really, but enough to put me under, so I stay asleep. No more psychosis, thank you very much.

The only reason I dragged that skeleton out of my burgeoning closet is because for the next 3 nights, poor JC had to put up with Ms Hot Stuff getting up and MIAOWING and climbing the windows, shades, shower curtain and just raising 47 kinds of hell. He was so afraid she’d hurt herself or tear her stitches. I was waking up and finding him face down on the couch and the cat fast asleep on his side of the bed. All kinds of stuff would be laid on the floor. Not that we have all that much. I still laugh. Just hilarious. O the humanity! Once we finally let her back out, she will not, for love or money, come back in, with one exception.

Last week, JC had to have an emergency hospitalization. About 2 weeks ago, Ms. La La had been trying to con him out of something. That’s pretty much what she does, but that’s how cats roll. “Aren’t I pretty? Aren’t I cute? Give me some food. Meow. Here, let me snarl that up for ya!” We’ve had lots of fun making up conversations, JC does the best impression, with his West Texas drawl: “Ah’m a gahrl. Ah don’t eat bahloney. Ah’m a gahrl. Ah might eat a hotdog. Mash it up fahr me.” I said, “When did she tell you she’s a cat?”

Smartass JC said, “she hasn’t told me about that, yet.” I laughed. Well, when JC was in the hospital, she came up and banged on the door, demanded to be let in. She marched into the kitchen, looked up at the ceiling, and meowed at me. She stared at the cabinets. Meowed. I opened them. She looked in them. She went in the bathroom, looked every where for JC. She let me feed her, when I let her out and let me pet her and then she went off to sleep under the house. She thought I’d hidden him in the house; rotten little, spoiled thing.

When JC comes home the next evening, he’s home for about 10 minutes, I hear this ruckus on the porch. I look out. She’s heard his voice and has climbed the screen door. He goes to her and they have their ritual; he feeds her and sits outside while she eats. He sits with her and talks to her while she grooms afterwards. It’s pleasant. She sleeps awhile at his feet and then she goes off. That’s how cats roll.