Showing posts with label parkinson's. Show all posts
Showing posts with label parkinson's. Show all posts

Tuesday, January 8, 2013

#ROW80 1ST QUARTER POST 2 – WITH NO PARTICULAR TOPIC IN MIND…


I have several things running through my mind, or maybe none. Today has been one of those days where I seem to have too much of something, or maybe nothing. Or if it’s something, it’s something that is so negligible in import as to be, well, negligible; minute. On the sub-atomic level. Actually, I haven’t been able to concentrate on one God-damned thing for more than 5 seconds all day. This is ADHD full out and rampant at its worst. This is about the time, the bipolar shift kicks in and I’m in that manic phase. It’s getting close to the one year anniversary of the Great, “Stay Up All of February & Have a Psychotic Break!” 

This year, I’m prepared. So, looking good with all my head meds and good vibes. This is also the same time after the psychotic break that I don’t remember along with the Bonus Mental Hospital Committal that my physical symptoms of “PD or non-PD, that is the question” (hear me, Tampa-USF-shrink-chuckleheads, hmmm?) began. They have trebled in severity since that time. The symptoms, not the chuckleheads. 

But, I’m doing great; I’m happy and I’m in a wonderful place. I have friends and I have a purpose in life. My purpose in life is to illuminate, rant, amuse and just be a general pain in the ass to whoever will be bothered to spend 5 minutes reading my blabberings. I stopped writing for a while, because, frankly, the tremors have gotten rough. Along with that, I have lots and lots of mental “fugue states” for want of a better term. I do have some dementia, too.

It makes writing a supreme pain in the ass and I was hating it. Just hating writing anything. It became this monumental struggle. What should take me 45 minutes, was taking me a day and a half. Without any type of diagnosis or treatment for neuro-muscular disorder, I can barely function at 1/10 speed. So, I pretty much stopped writing and barely visited my buddies online. I hate running around online and presenting all of this, so I just kind of drop off of the face of the earth, which isn’t right, either. But, there it is.

I’ve adopted a “regimen” of sleeping 10 or as much as 12 hours a day, which has helped me tremendously. I’ve been eating as well as I possibly can. My weight is holding at 100 lbs. I take all of my vitamins and meds. My primary doctor and my psychiatrist have been working with me and I am enrolled in a couple of these programs where the drug companies pay for the most expensive drugs. In March, I will be covered under Medicare and *fingers crossed* going to the Center of Excellence study at USF where they are funding Parkinson’s Disease studies.

So, enough of my bullshit. My friend, Sundae Rye (visit his website at: http://sundaeryestudio.com/ and follow him on Twitter @SundaeRyeand I are "pen pals" (email pals?) Sundae is one of the most gifted and out there people I’ve had the great good fortune to run across. He’s a superb writer, illustrator and designer. He's funny as hell, and spurs me to new heights of… I don’t know, lunacy? My latest is “blahbernation.” Instead of “hibernation.” So, Sundae thought that was pretty cool. He used it in such a way though, like, “The United States of Blahbernation.” So, I’m here to say now, if that shit takes off? Sundae Rye gets first dibs on it. It’s his copyright. Do check him out; his books are awesome and wonderfully skewed, as is his artwork.  

I wonder what the flag to that country would look like? The national anthem would be: eeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee, sung in the key of E#. No words, just eeeeeeeeeeeeeeeeee. Imagine the national bird. A parakeet? Nah. A wren. Yeah, we could have fun with this.


"What? Me, blah?" or, Alfred E. Blah

That’s really about it; although I did have another one of my crazy, fun trips to my grocery store, yesterday. I must correct an omission. When I wrote the post for Thanksgiving about the pink pumpkins, I mentioned two of the men who work at the store in produce. One gentleman is named Casey and I named him. The other gentleman, who is also a very fine man is named Jim, and I omitted his name, not out of negligence, but because I didn’t know his name. For that I am sorry. I told him about that post and he read it and we finally introduced ourselves to one another. So, Jim! Thank you! You valiantly wrangled those pink pumpkins!


YEEHAA!!!!!!

I love that store and the people who work there are awesome. Jim in produce is one of the more awesome among the group. I’ve been going to that market since I was first homeless and they’ve always been terrific. I’m there 3 times a week and it’s always fun to visit. It takes me 6 hours to shop.

I’m still not too sure about what goes on in the spice aisle though. The cake and brownie mixes are also in that aisle, across from the spices, and every time I go to get some yellow cake or brownie mix, there is covert activity. This time, it was a guy whispering into a cell phone. When he saw me coming, he hung up quickly and grinned sheepishly. He sort of hovered for a minute and then said, “Where’s the complete spice?” All Spice? I asked him, trying to be helpful. Nope, he insisted there was a “complete” spice. He never did find it and left, muttering about going to Publix. Okay, guy. I do hope he found what he needed. Not too freaky, but for the fact that his twin came by, not 2 seconds later, and we had to re-enact "Ground Hog Day." I got to do the Bill Murray part. Geeze o pete. Once again, I grabbed my brownies and skipped on out of there!

So, Row 80 starts up again on the 9th of January. I’m glad to be back at it, but I need to try and figure out what my real goals are and what I am really trying to do. I’m 57, have had 2 different careers and am not really sure what I want to do next. I don’t want to be like my father, who found himself on disability at the age of 48. I think that was mostly by his choice. He did try to go back to work after what was a crippling heart attack, but he didn’t last long in the work-a-day world. He died 11 years later, after living pretty much the way he had always lived; heedless and unaware of what his own lifestyle and incapacitation would do to those around him who loved him.

As an only child, I was crushed when he died in his sleep, unexpectedly. I was 31. But, in truth, he outlived my prediction. I had last seen him at his mother’s funeral in 1985 and I really thought he would not live out the year. He out-lasted my prediction by 1 and ½ years. When he was first out on disability, he had mentioned something about law school, which he could easily have done, as smart as he was. It would have taken him 4 years. I have been on disability for almost 2 years. I take care of myself, but really, none of us knows when our time will come. I think I just answered my own question.

Thursday, December 13, 2012

ROW 80 POST 40 – SIGNS AND WARNINGS


With a complete lack of any other idea, I have decided to start a post about the warnings regarding side effects caused when taking certain medications. If I stick to writing this, I may even finish the bastard. The last several attempts, produced actual posts, but my win-loss record overall, is dismaying.

Anyway, so yeah; medicine, medications, salves, pills, injections, you-name-it. Over-the-counter or prescription, topical, taken internally; it doesn’t matter. These things can do some pretty frightening ju-ju to your tender self, if you’re susceptible, or if you abuse the shit. Some of this crap causes side-effects even if you look at it, or handle it improperly. Poof! Up in smoke! Just like nitroglycerin!

Now, I’m not talking about the warnings for chuckleheads on ridiculously obviously stuff, like you see on costume Superman or Bat Capes: (Warning: Cape does not enable wearer to fly. This one’s stupid anyway. Batman never could fly, he had a Bat ‘copter and he had all kinds of shit in his Bat Utility Belt, so that one was just wrong.)


This might have looked more sinister if not taken half in the SUNLIGHT.
On second thought, no.


No, I’m talking about the Cripes-a-Mighty side effects and warnings that are plastered all over a bottle of pills that you get from your friendly pill-pusher pharmacy or your witch doctor. I am currently taking Cymbalta for depression, 30 mg per day. It works and THANK GOD, I do not have any of the following:

·       Nausea
·       Dry mouth
·       Sleepiness
·       Fatigue
·       Constipation
·       Dizziness
·       Decreased appetite
·       Increased sweating

But, you know what? This is kind of boring. There’s another drug I heard about, that I have not yet had to take; I'll get to that in a minute. I’m also on Topamax and it has a batch of side effects too:

·       Unusual sensations, such as burning or tingling
·       Fatigue
·       Drowsiness
·       Mental and physical slowing or delays
·       Nervousness
·       Upper respiratory infection
·       Coordination problems
·       Weight loss
·       Loss of appetite
·       Taste changes
·       Confusion
·       Difficulty with concentration or attention
·       Nausea

Hmm, some of that sounds an awful lot like some of the Parkinson's Disease symptoms, I was experiencing BEFORE I started taking Topamax, along with the others; tremors, drooling, stiffness, ball-o-toes 'n' fingers, etc. Still have that and all this other shit, now that I'm taking Topamax because I’m bipolar and have a tendency to get really, really, really psychotic, and there's a chance I might get violent, 'cause I have this thing called "poor impulse control," and a kinda sorta violent streak for a girl, so, at first I was taking some other anti-psychotic drug. I can’t even remember the name now. I just remember the One Warning, “If you itch and break out, get to the ER immediately!” I itched and got to said ER, where I was Presto! Change-O! put on Topamax! So, now, along with the above, I risk these lovely side effects: 

·       Mood problems
·       Decreased sense of touch
·       Viral infections
·       Abdominal pain (stomach pain)
·       Joint pain
·       Weakness
·       Sore throat
·       Dry mouth
·       Indigestion
·       Mood problems
·       Back pain

Plus, the ability to write horrible run-on sentences. Well, shit. I’ve EXPERIENCED (Hello? Who hasn't?) all of this and more. I had all, or most of this BEFORE I took the Topamax. I still have ALL (Hello? Who doesn't?) of this, I just am no longer on a hair-trigger. I still have an inclination to bust heads now and then, but it's just an idle notion, and aimed at the unjust bullies of the world. Of course, looking at this list of bullshit, you can see why anyone would be in a pissy mood. Jeepers!

This other drug that I’ve heard about, but have not yet had to take is for ADHD. Oh, please God, no. Even if I had it, I would tell no one. There’s a new drug that has “can cause tics” as a side effect. Un-fucking-real. The tag line says, “Blah takes care of my ADHD, I do the rest.” I’d do the “rest” by hopping off a fucking bridge if I had to take a drug that gave me tics.


At first, I thought it was "ticks" like "woodticks." I wondered why anyone would want insects as a side effect. Then, when I realized it was "tics," I was all like, "HELL NO!"

keeping in basements and eating pets occur in 10% of patients. If you miss a dose, please jump from your roof, shouting "AIYEEEEE" on the way down, while taking 2 doses, at your next regularly scheduled eclipse. If you begin to levitate, cease taking your medication and call your exorcist immediately." That's the shGeeze, if a drug is going to give you side effects, they should be fun side effects. For instance, I want that medicine that says: "May cause sightings of the dead. You may sprout horns and/or cloven hooves. Cases of hot-dog finger have been noted in clinical trials. Instances of Chthulu setting up houseit I wanna take.


Wednesday, July 11, 2012

CHECKUP... ER, CHECK IN FOR ROW80

CHECK-IN ROW80 CHALLENGE


I got up this morning sure I was going to blog about violas. A sure-fire, slam-dunk, 750 word quickie essay if there ever were one. Then, I gobbled down my psych meds, had me some refreshing iced-tea from the night before. Aaaah! Nothing life stale back-wash! And started to read my emails.


Disqus, Disqus, Disqus, Disqus, Disqus, Twitter, Disqus, Twitter. Hmm. I have been reading several different blogs and carefully trying to, or in some case, rather slap-dashedly, reply to what I read in a coherent and somewhat analytical fashion.


I guess it wouldn't be too soon for me to establish my goals for ROW80 here. Learn to write in a polished and coherent manner, rhetorical-wise, I mean. In 80 days or less. Guess I'm well on my way!


Okay! Now that the house-keeping is out of the way, I can get back to the ever important goal of writing in a coherent-type fashion. Where was I? Oh yeah.  


Disqus, Disqus, Disqus, Disqus, Disqus, Twitter, Disqus, Twitter. Hmm. Andi-Roo (forever known to me now as the Dialog Grand Champion) answered every single one of my comments in every single one of her posts. This is no mean feat. I have noticed this tendency to oh, say, give a shit? with other bloggers as well. Bloggers who really care about their work tend to answer the comments from their readers!!! Color me shocked! In this day and age! 


Well, I started rethinking my idea about horking up little-known facts about violas, for ROW80 today. Chances are, if any of you played viola, you did it in elementary school for about 4 weeks, decided it sucked and went on to play the drums, so you could get chicks. I might have written an okay post, but it would be like an easy "A" and it would defeat the purpose of what this challenge is about, which is setting attainable goals. 


I believe I mentioned I can write. The sad fact is, I have neither family nor full time career to keep me from writing. I am disabled and housebound for the most part. I also suffer (although I think it's more of a party in my head, most of the time) from mental illness. I always have huge writer's block here, so let me just say it real quick and we're done with it; surgical strike: legally blind, bi-polar, depression, Parkinson's. Done.


So, nothing fatal, just annoying shit. And boy, do I annoy the shit out of people. I hope to do it professionally some day, in a lyrical, almost Garrison Keillor-ish kind of way, but will settle for Calvin Trillin. So, I think my main challenge is going to be waiting for a cause. For me, I seem to be at my best as a writer when something strikes me as either a completely egregious act of cruelty to something so weak and small, or something so stupidly obvious as to cause my head to implode. 


If this all seems quixotic, it's because it is. I mentioned in a post on the 4th of July that I've had a very rough time lately, but I am feeling much better and more centered. I also sense great changes, cosmically. Great, now I sound insane. Maybe it's getting older. Geeze. Mary. This is a blog, not psycho-therapy.


Anyway, I see a vast slice of the universe from where I sit (in a plastic patio chair, in my bedroom, in front of my computer screen.) I see eons past and I see far into the future from these 3 square feet in Tampa. I see into the hearts and minds of kind, loving people and I see into the hearts and minds of those who wish us nothing but evil, destruction, loss and madness. Sometimes I see it too well.


I find it amazing that it is so easy to see into the heart of darkness and understand it. I also see why it is so compelling and it's pull so subtle and strong. We all have it. We are all heir to that Faustian undertow, that slippery slope and once started down it, can a soul retrace the path? I didn't mean to go down this road today, but, I never know where I'm apt to find myself. I've actually made friends with this. It was a lifelong process and there were times I didn't understand it. It worked out, though for two reasons. I know why I did it, and I don't have to do it anymore; the drugs help, i do it only in defense. But, sadly, I did it, because no one paid attention when I was "good."  But, I digress.


I mentioned to Andi-Roo in a comment that I would be able to do 750 words easily and she said she'd be lucky to "poop out 3 pages" a week, which is very cool. I told her and I repeat to you all, I hope you all don't wish for me to take the literary equivalent of Kaopectate. <3


Quick P.S. As a work in progress, this blog is starting to resemble an overgrown petrie dish, heh.