After my
much-anticipated trip to the Neurologist and what I was sure would be a
slam-dunk “bed-side” diagnosis of my Parkinson’s Disease (you have to exhibit 2 of 4 symptoms, there are NO quantifiable tests), I came home in a
frazzled state of mind. Worse than my usual state of mind and felt I had been
set up. I had all of my paper work and all of my ammunition; MRIs, EMG test results and
corroborating documentation from leading neurologists.
The
verdict? “We’re not sure you have Parkinson’s Disease; you also have
malnutrition, you need your thyroid checked, you take B-12 injections every
month, you’re blind. You have mild neuropathy.”
They blinked at me and here came the zinger, “You’re bipolar.” More
blinking. “We must rule out stoofs.” This after almost two hours of
neurological TORTURE and making me run into walls and try to touch their
goddamned fingers. I CAN’T SEE, YOU STUPID SHITS; DON’T MAKE ME DO IT 20 TIMES.
I am not an act in a circus.
No.
Fucking. Shit. Guilty to all of the above, but for one, assbites. This shit has
gotten WAY worse, every fucking symptom I just told you about over the last 2
MONTHS. The tremors, the pain, the ear-hooting, the 1000-yard stare non-vision,
the neuropathy, all of it. I’ve had all of that other shit for years. So, tell
me, Dr. Mengeles, why the FUCK didn’t you just come out and say “We’re going to
wait until Medicare will pick up the tab in March of 2013. We have no intention
of lessening your suffering until then.” Fuck you, you Nazis. And Dr. Mengele?
If you ever, EVER barge into a room again and say to me “Why are you here?” in
that tone of voice as your first word of greeting to me? I will behead you. I
mean it. You suck. You can just goose-step right out into traffic.
This Guy Would Have Been a Better Doctor
I was all
set to go off and sulk for 2 months or stay up for a month or set my hair on
fire and run down Nebraska Avenue, 33605, but the last time I chose number 2,
it earned me a stay at the State-Subsidized Happy Acres. Rather then eat a
bunch of pills, stay up for several weeks, have a psychotic break, try to climb
in the fridge, go back and play “Wheel O’ Death” with those fine folks at St.
Joseph’s Hospital, I decided to write about it instead. Besides, and this is
the worst, not the possibility of dying; the fact that I would do something so
wantonly callous and thoughtless to JC and possibly leave him behind. That
leaves me colder than cold.
One of
our compatriots from the shelter died, precisely 5 weeks after Wade died. Jeff
wasn’t well and didn’t really take care of himself, but he had a companion who
looked after him, Dana McKinney. Ms. McKinney is a dear and loving woman. She
promised Jeff, that he wouldn’t die homeless, and she saw to it. I weep now as
I write this. I couldn’t always understand their connection. They were rather like
2 children. He would get a bit huffy and leave her behind, but in the end would
always return where she would be waiting patiently. Sometimes, when people
aren’t well, they require a great deal of patience. We all require a great deal
of patience.
She would
come by and visit us after we moved, every so often and they were doing okay.
He was still working, but had put on a great deal of weight. I didn’t really
care for him, because he could be loud, and I was concerned for her. As always,
I’m on the outside. I once again, for the millionth time, have had the lesson,
“Thou Shouldn’t Judge,” driven home. So has JC. He was critical of Jeff as well
and worried about Dana; we needn’t have.
They
moved about 2 months ago. About 2 weeks ago, Jason, who still lives at Happy
Acres texted us with a very confused message about Dana and Jeff had died. I
called Dana and got an answering machine. She, then called Jason, who called me
and we were on some weird 3-way phone connection. Jason is in the main Guy/Frat
Party house standing next to Mike, the Manager who’s on the house phone talking
with Dana, who’s on the hospital bedside phone at St. Joseph’s with Jeff, who’s
in the process of dying. Jason’s on the phone with me, so we have this
fucked-up round robin of death thing going on. I want to do nothing so much as
hang up the phone. This is so Nebraska Avenue, 33605. Touching, yet a
scramble-fuck-wheel-o-mortality of hilarious. These are dear, dear people. We
really do care. Possibly because in many cases, we’re the only family we have,
as fucked up as we are.
I can
hear beeping and yelling from the hospital. I can hear some kind of football
game “12 to 3 Bobcats!” and cheering. I can hear somebody threatening someone
with a knife “Yo Dude, dem’s my Twinks; I be cuttin’ yo ass! Git yo hands off
‘em!” and rap: “BOOM-dada BOOM-dada BOOM-dada” in the Frat House. Dana’s quiet
hitched-in sobs. Jason’s breathing. Mike and I are silent. I’m standing next to
JC. He’s looking down at me with his blue eyes. He has such blue, blue eyes.
Beautiful eyes, with black lashes. We always argue over who has the prettiest
blue eyes. He does, by miles. I look down; I’m welling up. Gradually, I notice
the sounds dying out, the TV goes off, music stops, the banter stops, I can’t
even hear Jason’s breathing. Just Dana’s quiet
sobbing. It’s absolutely silent…. No beeping. Utter silence for maybe 20
seconds. A long time on a phone. First Dana, then Jason says, quickly, “Jeff’s
gone.”
2 comments:
If you didn't have the shakes before that , that one doctor visit would have been enough to make you shake non-stop. I'm glad you decided to write it out instead of act on how you felt. And while I know it's not funny, I found myself grinning at what an idiot doctor you have and the image I saw in my head of you taking cymbals to either side of his head over and over yelling, "Can you hear me now?" Ahem. Sorry about Jeff. :( And best of luck with your new journaling adventure. I'm sure you'll be able to get everything organized and hopefully you'll find some memories to write about that you've forgotten about.
Ryan, the ridiculous thing is 35% of all Parkinson's patients NEVER have tremors. Early in the morning like that I don't have them. By the time I got through doing my bit as the Side Show at the Carnival, I was looking for a Scimitar to start the beheadings. Actually, I could behead whilst wearing cymbals! And it's quite funny really. Seriously, if you have to have some kind of neuro screwiness, this works. Thank you for the sentiments about Jeff. More on him today. Getting the biggest spiral notebook to scribble in, er uh, journal in today, too.
Post a Comment