DEPRESSION AND
"PARKINSON'S
DISEASE OR NON-PARKINSON'S DISEASE, THAT IS THE QUESTION"
NOTE:
April is a busy month for lots of folks. It starts off well, with
April Fool's Day, which I personally celebrate every day; sometimes
several times a day, or an hour, if I'm having a good run. As well as
this fine Challenge, Blogging from A to Z for April of 2013, April is
also Parkinson's Disease Awareness month. I have Parkinson's Disease.
Or not. That is the question. Stick around long enough and you will
all find out the answer to the worst-kept secret since the H-Bomb
recipe was sold to the USSR, back in the 50s and since this is my
blog on Thursdays, I will be posting my posts here and at P.A.N.D.A. Even if you don't know anyone with Parkinson's Disease or any type of
movement disorder, or you are not a caregiver for anyone, or are
dealing with any type of chronic illness, you might want to browse
this site. The men and women and this community are brave and
wonderful, hopeful and funny people. They are my battery mates. Now,
back to our Challenge here at A-to-Z!
I could
be coy and state that here we have a multitude of “D” words, but
today is Thursday, day 4 of the A-to-Z April Challenge and it is also
Parkinson's Disease Awareness Month. I blog on most Thursdays for the
P.A.N.D.A. Organization, which is a wonderful group that provides
support to folks with Parkinson's, or PD, or their caregivers. Most people associate this movement disorder with Michael J. Fox, who has young onset PD, or Muhammad Ali, who may or may not have acquired PD or Parkinsonism during is delayed career after his boxing license was re-instated. Like so many neuro-muscular with all of the inherent symptomology and untangling of the physical and mental aspects, it is hard to pinpoint any one specific cause for these conditions. My PD or not-PD is not yours and vice versa. It's hard to quantify and eludes labeling.
My friend, YumaBev (Twitter @YumaBev and Parkinson's Humor) is a HUGE advocate for PD. She sings "I don't need no rockin' chair, 'cause I'm rockin' on my own!"
I am
currently among the undiagnosed and non-medicated for that, and my story is not unique, although
my manifestations of the disease or condition or visitation, for the
more celestially and whimsically inclined are unique to me, as are my
outlooks and reactions to the whole shebang. I have had a whale of a
journey to get here, just right here, right now, typing this to you
A-to-Z-ers and P.A.N.D.A. Folks. I guess we all have these sorts of
stories where we come in after the intermission and are trying to get
caught up.
You
haven't missed all that much. Just know that people with
neuro-muscular disorders of any stripe, I find, tend to suffer from
depression and black it is when it hits. There is of course, the usual raging debate, about
whether or not this really exists. It does and it is ferocious in its
callous disregard for a person's progress. Pulling ourselves up by
our bootstraps is not an answer. More often than not, the etiology is
biochemical, as I found when I had a psychotic break after not
sleeping for a month and woke up a month later in a mental ward with
tremors and a patchy short-term memory. The fun was only beginning.
Testing for PD doesn't exist and I, in the course of the past year,
with careful observation of myself, reading, conversation with other
Parkinson's Disease patients, memories of my life and my family life
(I am an only child, no offspring and both parents deceased) can
conclude that my mother suffered from PD or PD-like symptoms as well,
though she was never diagnosed to my knowledge. After the committal
to the mental ward, the psychiatrist, who concluded that I was
absolutely no harm to anyone or myself, but was bipolar and
prescribed accordingly and sent me on my way, also noted, that this
was the least troublesome committal he'd ever dealt with; bipolarity
is part of the Parkinson's. I think one of the reasons for that is I am in my late 50s, although I had exhibited symptoms for years.
I
probably have more of the mental issues than physical; I do have
tremors and they have really been troublesome of late. I can't play
my viola without it sounding like a machine gun. ViolaFury is
definitely not pleased. This brings out the not really happy part of
me. This is not good. I will have to think nice thoughts or take a
time out... from humanity. Just kidding. But, it really points to
something that I mentioned briefly in my Beethoven post. Pissed much?
I don't do this well; by the time we're here, hostages have been taken and Haz-Mat is on the scene... Just kidding.
Mad?
ViolaFury is my nom de guerre for a reason. She puts on her boxing
gloves when she needs them. She may need them. I believe I mentioned
the Roman empire and Emperors during their Triumphs in Ancient Rome; in a not very well-written way, I was trying to allude to their mortality and how they were reminded of it by slaves during the triumphs. Beethoven, in his way, did that to Bonaparte in his 3rd symphony. We all do that, while perversely "facing the tiger." I can put up with the spastic typing and not being able to comb my
hair or wear make up. That's minor stuff.
But if I
can't play Wolf? I can't play my gorgeous Guidantus viola, built in
1837, only 10 years after Beethoven died, to his (the viola's) full potential and
play as I am able to play? I put on my Roman boxing gloves. They used
to be made out of leather, with metal studs added and were called cestus, to inflict greater damage. I am a boxing fan; a HUGE boxing fan. I may have to dig those bad boys
out of storage, and strap 'em on, to take on PD or non-PD, that is
the question, because "nobody puts Wolf in the corner." Metaphorically,
of course, but for real? I wish, in my little brawler heart.
Wolf and I, playing William Walton's Viola Concerto in a windstorm. The rainstorm pictures didn't work so well. Wolf doesn't like water.
In all
seriousness, this is fine. I'd much rather have this facing me than
the horrible black sorrow of depression, the fear that all of life is
ending and the mourning over the horrific cruelties we inflict on one
another with so little thought, or worse, with so much planning and
intention to do the greatest harm and evil possible. If life is to
have any meaning it needs to be fought for and won hard. Every single
day is a celebration, an ode to happiness, joy, a will to express
ourselves the best that we are able to and to love one another freely
and without reservation.
If I
didn't have the challenges I have had previous to this moment, I
would have nothing to say or express, nothing to sing or play or
write about. This is my song and this is also what my Parkinson's
Awareness has given me.